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Here’s our press release from today. Look out Grammys, here we come!

FOR IMMEDIATE RELEASE

GRAMMY STARS READY TO TAKE A BITE OF NONUTTIN’

DUNCAN, BC – What snacks would you feed hungry music stars at the Grammy Awards this Sunday? Organizers of the dressing room snacks were asking themselves this question while trying to juggle all of the special dietary needs that many artists require. To solve this dietary challenge, they gave Vancouver Island’s own Nonuttin’ Natural Foods a call.

“With artists from Sir Paul McCartney who is vegetarian to Lady Gaga who eats a gluten free diet, it’s not easy to provide food to the world’s greatest music stars. That’s where Nonuttin’ granola bars and trail mixes came to the rescue,” says Alana Elliott, President and Founder of Nonuttin’ Natural Foods. All Nonuttin’ products are free of 9 of the top 10 food allergens and are certified gluten free in the US.

Elliott sent over 500 granola bars and trail mix packs to the Staples Center in Los Angeles where Sunday’s Grammy Award Show will take place. With 50 dressing rooms and a green room, Nonuttin’ products will be available in all of the rooms whether they hold a single artist or a band and their entourage.

“My two daughters are the ones who are most impressed with our involvement in the Grammys,” laughs Elliott. “They thought their mom wasn’t up to date on the latest music trends. Now they can’t wait to see if their favourite artists, like Adele, will be enjoying our snacks.”

My husband and I watched a fascinating documentary on David Suzuki’s, The Nature of Things on CBC this weekend. It was about the latest in autism research that shows that gut health may be the link. Some parents are already putting this into action with gluten/dairy free diets for their autistic children.

This documentary also brings up illnesses in infants and the onset of autism with anecdotal information from different parents of autistic children. It is especially poignant for those whose children were developing normally and then autism took over.

Rob has always felt that our youngest daughter’s life-threatening food allergies were created by an unknown illness just before she turned 1 when she was in Pediatric Intensive Care in the Isolation Wing and she was dosed with massive amounts of antiobiotics. Her food allergic reactions showed up shortly after that. Watching this documentary just gave him even stronger feelings that he is correct.

Here is the link to watch the documentary online at CBC:
Autism Enigma

You say it’s your birthday
It’s my birthday too–yeah
They say it’s your birthday
We’re gonna have a good time
I’m glad it’s your birthday
Happy birthday to you.
From “Today is Your Birthday” by The Beatles

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Who knew that when starting at a new school that my food allergic child would cause more stress than the school itself? We’ve always known that our child has a great deal of difficulty with change, even if she doesn’t show it anywhere but in the safe confines of our home. I’m not sure if she’s this way because of the food allergies or whether she would have been like that regardless, all I know is that change creates a great deal of anxiety.

Before school started, we had a great meeting with the school counsellor assigned to our child and got a better sense of how they handle food allergies and how we could work together. We were all pleased to find out that they have dozens of food allergic children in the school, which makes sense given the current statistics. But still, it was a consolation to Megan to know that she was not alone.

After that, our next step was to take a new picture of Megan to update her anaphylaxis poster plus recraft a letter for the parents in her classes and send those off to the counsellor for distribution to all staff. The first mistake I made was including Megan in the process. I figured that since she turned 15 the previous week, she should be included in making a new letter for high school. Apparently, nothing I said was right. In the end, after many tears, it basically came down to the fact that she didn’t want to be singled out as different. I get it, believe me, I do, but our reality requires everyone around her, including her peers, to be educated.

The next wrong move was having her check out the updated anaphylaxis poster before sending it off to the counsellor with instructions to post on neon paper and put in all Megan’s classrooms and staff areas. Blowup number 2 came at that point. I’ve done these posters every year since she started school, including when she moved to new schools. But at the age of 15, the idea of a poster if mortifying. Again, I get it, but in my book food allergies are one time when people need to know who you are. And that comes from experience when I didn’t know all of the students in the school I was teaching at.

So once that was done and my child wouldn’t even look at me, she went off to her first day for just a morning of orientation.
Megan started off the school year with a homeroom teacher who has peanut allergies. Sounds good right? Until the part when they realized that during the day when she isn’t in homeroom, they have special needs kids and Aboriginal kids (we have a reserve very close by) working with different counsellors, etc. All good except when those kids are hungry, guess what they feed them? Yup, peanut butter sandwiches. And the concern expressed by the aides who feed the kids was that some of those kids may be a bit smeary and not clean up well. I was really pleased that the counsellor informed me of this situation; I felt that the staff had Megan’s best interests at heart.

Therefore, that afternoon I moved Megan into a homeroom that is a science lab because no food is allowed in at any time. The school was great in providing the suggestion and in making it happen fast but Megan imploded. For me to move her after she got comfortable in that new classroom that first day and after I sent a letter plus posters to be posted up all over the school with her face on them, was unforgiveable. She figured she’d get through her homeroom for the next 3 years (they stay in the same room with kids of all ages), by not touching anything. Highly unrealistic to the logical thinker but completely normal to a kid ready to run screaming into the night. All I could think about was how teenagers have the highest risk of anaphylaxis and now I know why.

I was a basket case. How do you handle when the parents and school are working together great but the child is completely not on board? It caused me more than one sleepless night and many heart to heart talks with my husband. In the end, Megan did apologise to me when she realized she was being unreasonable and that we all had her best interests at heart. So we seem to have settled down but I’m still dancing on eggshells a bit.

Just don’t let Megan read this blog – I’m not sure our house could survive it.

If you’ve been following our Facebook page (http://www.facebook.com/pages/Nonuttin-Natural-Foods/159162014110203, you’ll see that I’m heading off next week to a trade show for a Canadian natural foods chain.

After the trade show, I get all of the owners and managers of those stores for an hour and a half to provide them with an overview of food allergies and gluten free diets, what the needs are for consumers and what they need to do to earn the confidence of those of us looking for special dietary foods.

I certainly know what gains my trust in a store. And putting the peanut butter alternative (ie. soybutter, sunbutter) smack dab in the middle of all of the peanut butter isn’t it. I don’t really expect any service or knowledge about food allergies when I go to a mass chain grocery store (even if they have a natural or gluten free section) but I certainly do when I go to a smaller natural foods store or health food store. But any major grocery chain that did come up with a better understanding of special diets, such as putting a dietician in their natural foods section, (as one of our clients in the Midwest, Hy-Vee does) would have my business in a heartbeat. And please, clean up the bulk sections so that potential allergens aren’t spilled all over the floor!

So what do you need? Special sections? Items placed throughout the store but with good signage? Special dietary tours with samples and coupons so you aren’t stuck in your same old rut? Would you prefer a trained specialist in the store? Do you appreciate contained bulk bins? Do you want the store to have product documentation on special diet products? How about demos – do you run from them when they’re in an aisle?

Anything that you share with me will be added to my presentation next week (without names of course) so that these store owners/managers can hear from the people that count. Food allergies and gluten free diets are here to stay; let’s begin the revolution with willing stores who want to serve you better.

An article published earlier this month indicated that a recent UK study shows that food allergic children and their families feel isolated, stigmatized and unfairly excluded. To read the total article, you can link here: http://www.huffingtonpost.com/2011/08/17/kids-nut-allergy-teased-excluded_n_929809.html

I would have to say that overall, we’ve been lucky not to have many issues happen with our allergic child but that doesn’t mean that they haven’t been there. There was the time that a good buddy at school told our child that she couldn’t have her to her birthday party because her mom didn’t want to deal with her peanut allergy. It took all of my strength not to phone that mom and have a little discussion. I didn’t in the end since I didn’t really think it would change anything except mortify my child even further.

There was also the time that one child wiped his hands down all of the bus seats as he got on the bus, telling everyone that he’d just had peanut butter. We were really pleased with how that got handled by the students on the bus themselves, many who had been riding that bus with our daughter for years and were very protective of her. Every child on that bus turned on that young man and kicked him off until he spoke to the bus driver. We then let the principal know when our child got home and told us what happened but peer pressure really made the difference that day. He never tried anything like that again.

But it’s also the incidents that aren’t so easy to quantify; when everybody else gets the birthday treat in the classroom or someone’s sharing candy with all of their friends but my child can’t take it. It’s definitely isolating, even when there is no evil intent. All kids need to learn (often the hard way) that life isn’t fair and sometimes bad things do happen to good people but there are plenty of opportunities to learn that out there without the added exclusion that food allergies can certainly bring.

Some of you are probably hoping to avoid the whole back to school mindset for a little while longer but I have to say that it’s been on my mind for a while. That’s because Megan is heading off to high school next year for grade 10. What compounds the normal food allergy issues is that it is a self-directed school where students work through modules and may have different schedules from each other.

This means that Megan is not attending her regular feeder high school but a magnet school where children come from all over the school district. For the first time, she will be without her regular posse of friends who have been very protective of Megan and her allergies. Further, as a self-directed school, there are not set lunch hours so we’ve already been told that kids eat everywhere and that food allergens may be difficult to monitor. The school itself is in a rural setting, about half an hour from our home by highway.

Statistically speaking, teenagers are at a higher risk of anaphylaxis than younger children. Throw in the regular teenage desire to not be different (which is often amplified for food allergic teens) and an assumption by adults that food allergic teens need to start becoming more responsible for their own safety and you can get a recipe for disaster. This is what worries me despite the fact that we know we’ve trained our child well. It’s still no guarantee, as many parents who have lost their teen allergic children can attest.

I’m not trying to be a scare monger but I’m finding this change really difficult. Even more so than when we moved to our new home here on Vancouver Island or when Megan went to junior high. Perhaps it’s a lack of control that I’m feeling, especially since it won’t be easy to just drop into the school and be as involved as I have been in the past.

On the bright side, we had to fill out a new food allergy form this summer to send into the school so I see that our school district’s food allergy policies are being followed. Megan’s epi pens are up to date and her alert bracelet is in good order. We informed the school as to her food allergies in the spring and we have another meeting at the end of August before school starts in September so we’re certainly doing all of the right things.

I’m not sure what the alternative is: home schooling, move to Antarctica or the biosphere, buy a teen size plastic bubble? We’d all be driven nuts in short order but maybe I’d sleep a little better at night.

I got a request on our facebook page (http://www.facebook.com/pages/Nonuttin-Natural-Foods/159162014110203) to put up a peanut free satay sauce that I refered to but Facebook is really not set up to write out a recipe so here it is instead.

I am one of those cooks that adds a dash of this or that and substitutes all of the time so you may need to adjust this to your taste. I use it on pasta, with chicken and vegetables on rice and for a fondue dipping sauce. And since it’s free of all of the top allergens except soy and/or easily adjusted to substitute safe ingredients, anybody can enjoy it.

Smooth or chunky peanut butter substitute: 1/3 cup
(I tend to use NoNuts Golden Peabutter when cooking and if you use this, you’ll need to add extra liquid as this substitute really soaks it up)
Oil (olive, canola, etc.) 1 Tbsp
Soy sauce 2 Tbsp
Seasoned rice vinegar (can use white) 1 Tbsp
Crushed Garlic clove (1) or garlic powder 1/4 tsp
Honey 1/4 cup
Water (or chicken broth for extra taste) 1/4 cup+ depending on your substitute and/or the consistency you like
Hot pepper sauce 1/4 tsp or to taste

Mix it all together, taste, adjust and that’s it. I hope you enjoy and are able to add a little Thai flavor to your cooking in a way that’s safe for your family.

I’m not sure if I’ve shared this before but I’m a member of Rotary International. In fact, up until Sunday, I was the club president for my morning Rotary club here in Duncan and am now immediate past president. The ideals of Rotary are ones I appreciate because they promote care and understanding both locally and internationally; something I’ve always tried to teach my kids.

One of the programs within Rotary that I think is so vital is the Youth Exchange Program. This program has many different options from summer exchanges through to full year placements world-wide. My oldest daughter decided to do the summer exchange program this year which means that we get a student for a full month at the same time as my daughter and then they go together to the other student’s home. In our case, we have a student from just outside Paris who arrived last night and both my daughter and this teen will go to France July 28th. My daughter will then come back alone on August 22nd.

Rob and I have always advocated travel with our children as we believe that it opens up understanding between cultures and allows one to learn so many things that cannot be taught with books. However, it is a challenge to travel with food allergies, even when traveling in your own country. For that reason, we always planned on having our oldest child participate in a Rotary exchange (she’s outgrown her food allergies and only has drug allergies now) but never felt comfortable with our youngest child and her 4 food allergies going on an exchange. We may need to rethink that.

The 15 year old that we brought to our home last night has many allergies, including to animals and a life-threatening peanut allergy. The original family that she had been paired with was unable to accommodate these allergies and so she inadvertently got paired with ours instead. It was a very fortuitous pairing since I’m allergic to animals and my youngest is allergic to peanuts; our house is a haven for our French teen. Her parents were very relieved as we’ve arranged everything through emails over the last few months. It also helps that our family speaks French and the French student speaks very good English – so no language barrier there.

But that takes a lot of faith for our French student’s family to trust another family halfway across the world with a life-threatening food allergy. I’m not sure I’d be up for that. Until our student was coming, my food allergic child also did not feel comfortable with applying for the Rotary Youth Exchange program as she thought that there was no way she would be able to find a family who she would feel safe with. And yet, our French teen’s family found just that with us.

Is it too much to expect that we might find someone who had food allergies too within the Rotary Youth Exchange Program? And what about the language barrier that is often present? We can rank our preferences for the country our child goes but that’s not always guaranteed. Right now, there are too many uncertainties for me to feel comfortable but am I placing limits on our food allergic child that are unreasonable if she feels comfortable? Next summer she would be almost 16 and at some point I have to be able to let go but is that first step sending her halfway across the world?

What do you think?