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Posts tagged ‘Celiac’

I just had a conversation with my parents as they are preparing dinner for tonight. One of the guests let them know that she can’t have peanuts, dairy or gluten and they needed help finding alternatives for a recipe. One of their ingredients said May contain milk so I asked whether she had an intolerance or a severe allergy but she had not provided that information. For most, a food sensitive individual could have a “may contain” but a food allergy makes that a definite no.

I’ve also heard complaints from chefs recently who make a special diet meal only to see that client eating off someone else’s plate. What do you think that chef will do the next time a special diet meal is required?

I think we’re doing a disservice by not communicating our special diets effectively like calling Celiac disease a gluten allergy or a food allergy as “minor”. If we don’t educate about the realities, how do we expect the general public (and those who serve us food) to understand and react appropriately?

I attend a lot of Gluten and/or Allergy Free Expos and every time I go, either as a vendor or as a consumer, I always get something good out of attending. Here’s why you should consider attending one in your area:

1. You’re Newly Diagnosed: Overwhelmed, having a hard time knowing what’s correct information on the internet or where you should start? Expos always have a roster of great speakers who can help demystify the new world you’re entering whether with information or wonderful recipes to try. Try to attend as many talks as you can to get a superb overview of how you can take your next step.

2. You Were Diagnosed Ages Ago: You too should try to attend as many talks as you can at the show. There have been so many studies of late with Celiac Disease and gluten intolerance and food allergies that you just may learn something new.

3. Taste Does Count: There are samples galore at these shows, it’s actually a good idea to come with an empty stomach or you’ll be full really fast. I heard a child say to her parent, “I can eat EVERYTHING here?” with wonderment. It just doesn’t get much better than that. And whether you’re newly diagnosed or old hat, you’ll be surprised at how good specialty diet food is these days and just how much variety is out there.

4. Discover a Small or Local Food Processor: Big grocery stores are getting so much better about offering gluten free and allergy friendly foods and that makes it easier to get your groceries done in one place. Yet at the same time, they all carry mostly the same items and those are the bigger names in the special diet world. At a trade show you’ll find smaller processors with innovative offerings and wonderful local restaurants and bakeries that have delights you just won’t find in your large grocery store.

5. You’ll Be Surrounded by People Just Like You! Really, imagine a world where everybody “Gets It”. Every booth you go to, all of the speakers, all of the people around you are experiencing the same issues that you do. You can strike up a conversation with any friendly stranger and discover that you’re not alone. Priceless!

I am very pleased to announce that we are removing soy from the Nonuttin’ facility.

Soy has been very helpful for many food allergic consumers as a high protein replacement for nuts. However, many customers have contacted us or spoken to us at trade shows about their increasing allergies or intolerance to soy. Soy is known to be cross-reactive for those with peanut allergies and Celiac Disease.

After carefully reviewing these requests and scouring the planet high and low for high quality ingredient replacements, the decision was made to transition away from soybeans and soy lecithin.

Throughout March, we will continue to package the soybean based Energy Explosion trail mix in both 30 g snack packs and black zip top pouches.

April 1, 2012, we will begin our transition by removing the dry roasted soybeans from our production floor. All Energy Explosion trail mix finished packages will remain in our facility and be sold on a first come, first served basis until all stock is depleted.

Once the production facility has all soybeans removed, soy allergen testing protocols will be implemented so that some Nonuttin’ products will have the May contain: soy absent from their labels.

Soy lecithin will remain in the facility (present in our chocolate chips and chunks) until we finish using the packaging that indicates contains or may contain: soy. While soy lecithin is suitable for many with soy allergies, it is not guaranteed risk free and it is prudent to continue labelling all products that are on lines with chocolate until the change is complete.

I expect that the finished transition to a completely soy free facility will be completed in 2013 and we will keep you up to date when that final date is determined.

Our staff thanks you in advance for your patience with the transition. We’re very excited to become free of ALL of the top 10 food allergens!

free-frog-3d-wallpaper-for-desktop_422_81218Happy Leap Year! Why not celebrate every 4 years with a one day sale? Simply put $50 worth of products (before taxes) in your cart and you’ll get 25% off all products. For 24 hours only starting at midnight and going to 11:59 pm Pacific Standard Time on Wednesday, February 29.

Don’t forget that you can still get free shipping when you spend $75 (after discounts and before taxes) and an additional 10% off when you spend $150 (after discounts and before taxes). The time to leap is now!

We just finished participating in the first ever sample kit that went out through a new service called Gfree Connect. The whole idea of this service is to make it really simple for you to get samples and coupons for a wide variety of gluten free products all delivered right to your door.

What I liked about it when the idea was presented to me is that it allows gluten free consumers to try products like ours that they don’t necessarily see in every grocery store. Sure, you’ve got your larger gluten free brands that are well known and easily available but you can also get regional samples that you can still get on the internet, even if they’re not available in your area. Plus, even with the bigger companies, they may be bringing out something new for you to try that you aren’t even aware of since your store may stock limited products.

And the pricing is really reasonable too from my perspective. The amount of time and effort you’d have to spend either cruising the internet or your local natural foods/grocery stores is worth the cost that they charge. I expect that this company will grow as more people get word and more companies choose to participate. At the recent Chicago Gluten Free and Allergy Expo, Gfree Connect had a table and they got a lot of interest and many people signing up.

Once the company grows, they may also be able to accommodate other sensitivites and food allergies as well so if you’ve got multiple food issues, keep an eye on them as they mature and refine their business. Check out their website at: http://gfreeconnect.com/

On Monday I had my re-audit of my products and facility by my gluten free certifier, the Gluten Free Certification Organization (GFCO). A re-audit is basically a follow up review after already having the initial application and inspection when we originally applied for Gluten Free Certification last year. Of course, in between we have to provide reports on our testing procedures and report new products, ingredients, etc. But yesterday’s visit was about going over our facility with a fine-tooth comb to ensure we’re doing everything right for continued certification.

So what does GF certification mean when you see it on a food product? For GFCO, it means that all Nonuttin products must be testable below 10 parts per million (ppm) and that we follow strict procedures for sourcing our ingredients and packaging materials, testing those ingredients and processing our products along with all of the record keeping that must be accurately maintained. GFCO also inspects all of their facilities.

Because our facility is dedicated to only Nonuttin’ recipes, we are audited with a different checklist. A company that has gluten in the facility plus produces gluten free products will have an additional checklist to go through. GFCO may require test swabs of surfaces to ensure no cross contamination between lines as an example and the company would be expected to keep gluten free ingredients segregated from gluten containing ingredients. Some people are not comfortable with gluten in the same facility and may check with a manufacturer to see whether they have a dedicated facility, even if they see a GF symbol.

The Celiac Sprue Association does have a logo on some products but it is not a certification process including facility inspections but a recognition seal that declares those companies have agreed to follow the criteria set by the association.

The Canadian Celiac Association has begun moving in the direction of GFCO with a certifying program as well but the program is not yet firmly entrenched.

As with all certifications however, companies must still meet the labelling regulations of the country they live in. In our case, Health Canada is still reviewing the gluten free labelling laws for the inclusion of oats. They have been doing so since last May when they published an intent document to change the gluten free labelling to allow for the possibility of pure oats. In the meantime, our US products all have the GFCO logo on them whereas the Canadian products have it only on those items without oats. Our oats products (all granolas and granola bars) indicate a wheat/barley/rye free logo instead.

For more information, check out these links:
GFCO: http://www.gfco.org/about.php
Health Canada Oats Labelling Intent: http://www.hc-sc.gc.ca/fn-an/consult/gluten2010/draft-ebauche-eng.php
Celiac Sprue Recognition Seal: http://www.csaceliacs.org/CSASealofRecognition.php
Canadian Celiac Association Certification Program: http://www.celiac.ca/certification.php

For those of you who have followed my blog for the last couple of years, you know that we’ve been no stranger to travel despite 6 food allergies in our family. We’ve been to the US, the United Arab Emirates, Oman, England and Costa Rica. We’ve flown, ferried, and even dugout canoed through canals in Costa Rica to get to our final destination (and yes, there were alligators!).

These travels have not been without their stresses and pre-planning is definitely key. The vast majority of our trips had us staying with very supportive family members and/or renting suites that had a kitchen so that we could do all of our own cooking.

The most difficult trips for planning are those that have us moving daily and trying to catch meals on the fly. If any of you have tried to get a safe meal in an airport, you know the frustration of not having your own food at your fingertips. Well, Megan (4 food allergies) and I are leaving on Friday morning at 5:30 am for her band trip down the coast of Washington, Oregon and California. It’s definitely a challenge given that we are in a different place each night until we reach Anaheim, where we have 3 nights with our own fridge and microwave.

Luckily, I have spent lots of time in Washington and Oregon of late plus we’ve had 2 previous trips to Disney (which has been fantastic for food allergies) and one to Universal Studios (which was not a helpful place for food allergies) plus my oldest daughter went on the same trip 2 years ago so I know what to expect. As a result, we have got a suitcase of granola bars, granola, trail mix, cookies, crackers, chocolates, soup and utensils. I’ve also got granola bars for all of the kids on the bus so that they can have a safe snack when necessary without resorting to items with Megan’s 4 allergies in them. This is one time it comes in handy to own an allergy friendly food company!

We’re also attending Medieval Times so I’ve called them and they’ve sent a menu with all of the ingredient lists so that we can specify how to change her menu. I’m also checking for the gluten in the meals so this might get quite interesting.

I would say that the most difficult times are when everybody else is eating dessert and we can’t or when the tour goes to a chocolate factory in San Francisco and we can’t have any of the chocolates and fudge that the other kids will be buying by the truckload. I try to mitigate that unfairness with a bunch of safe Easter chocolates I’ve found and packed into the suitcase but I’m the first to admit it’s just not the same. It’s certainly easier when we travel as a family since we all eat the same for everybody’s allergies but in a group, you can’t ask the other kids not to eat their dessert.

So wish us luck as I navigate the food allergy highway, particularly with a bunch of junior high school kids!

I learned something new today about probiotics that I thought was important to share, particularly with those who have milk or soy allergies.

Probiotics are the new wonder product in our society these days as science begins to address our gut health. Many scientists now recognize that what happens in our intestines affects all of our body functions and has a role to play in autoimmune disorders including Celiac Disease and Type 1 Diabetes. Many health professionals recommend the use of probiotics, gut friendly bacteria that helps intestinal health, along with prebiotic heavy foods that feed the probiotics and keep them healthy (i.e. oats, soybeans and inulin).

The amount of natural foods products that contain probiotics has exploded, primarily in the yogurt category. But for those that can’t eat yogurt, taking the probiotics in capsule format has become very popular.

Unfortunately, probiotics need to grow in a protein rich culture which may be milk or soy based, a fact that I was not aware of until today. While most of that culture is removed when the probiotics are freeze dried, there is potential for trace amounts of that culture to remain, potentially causing anaphylaxis for those with milk and soy allergies.

Health Canada issued a recall of 2 products today that may have this issue (no one to date has had a reaction) but they also included an advisory as part of that recall that explains about the cultures used for manufacturing probiotics. This is rare for Health Canada and therefore should be shared with anybody you know with either milk or soy allergies.

To link directly to the recall/advisory, see this link: http://www.hc-sc.gc.ca/ahc-asc/media/advisories-avis/_2011/2011_53-eng.php

I don’t want this blog to be a rant on other companies, truly. But I continue to see practices that you all need to be aware of out there while I’ve been traveling to various trade shows over the last month or so.

For example, at the biggest trade show, Natural Products Expo West in Anaheim, “gluten free” was everywhere on booths and products. The funniest one was on chicken, yes, chicken. I realize that some chicken has seasoning added and so ingredients still must be looked at. But the kicker on the chicken is that they were frying it up in the booth for tasting, after dredging it in wheat flour!

I saw the same thing happen on a gluten free spread that was being offered on regular wheat bagels to sample. It wasn’t until a Celiac pointed it out to them that they realized that there was a problem with this practice. It’s kind of scary since they were attracting many of the attendees who were Celiac, not just because they were there as store buyers.

In some cases, when the person demoing a product is hired for the day, they don’t always know the ins and outs of special diets but in both of the above companies, the owner of the company was doing the demoing.

And that’s in addition to continued products I see that have a claim like “nut free” on the front with a disclaimer “made in a facility that processes tree nuts” on the back. To me, you can have one or the other, not both.

So for you, the consumer, all I can say is really check your items. Check your ingredients even if there is a “free from” message on the front, don’t assume that demos are safe, and contact companies if you have any questions. This really is a buyer beware situation where you have to take control.

It’s the time of year when my travel schedule gets incredibly crazy as I go to both business trade shows and consumer trade shows for gluten free and allergy friendly foods. It means that my blog posts have rather erratic timing but I certainly find much in my travels to blog about.

I spent last week in Portland and Seattle, first attending a college and university foodservice trade show followed by meetings up the coast of the Pacific Northwest. It’s such an amazing difference from even 5 years ago when I had to convince many why they needed “free from” food in their stores and foodservice environments. Now, so many people are up on the needs and I’ll write another post about the amazing service one university in California gives their allergic students.

One disturbing development though was when I went on store visits. That’s when I pop into various stores in the area, some that carry our products, some that do not, so that I can see what they’re doing in their stores for the “free from” market. If I find something new and wonderful, I’ll purchase it to bring to my family to enjoy.

On 3 separate store visits, I found 3 different products that had labeling that to me, as a consumer of allergy friendly food, was unacceptable. I’ve often found inappropriate labeling on small, local companies’ products which I can understand. While it’s still not okay, tiny companies often don’t have the experience on labeling nor the budget to hire a labeling consultant. But this time I also found major companies that had really misleading labels.

I won’t mention the exact companies as these concerns are about me as a purchaser of free from food, not as the manufacturer of a potentially competing company. Here’s what I’m talking about:

Major National Gluten Free Company:
Front of package: Nut Free
Back of package disclaimer: Made in a facility that also processes tree nuts

Small Local Company:
Front of package: No Wheat, No Soy, No Dairy
Back of package disclaimer: Produced in a facility that may process wheat, dairy, eggs, nuts, shellfish, and/or soy

See anything that concerns you here? From my perspective, if a manufacturer is going to make a front of package “free from” claim, they are being misleading if they also feel that they must put on a disclaimer. It’s either one or the other, not both, in my opinion.

I did talk to the buyers at the stores of the above products (2 different stores). One store buyer agreed that it was a concern but that they were having great difficulty sourcing products that were completely free of many allergens.

The store buyer at a different store figured the “nut free” on the major brand gluten free muffins was just fine because there were no nuts in the muffins. Obviously, cross contamination concerns were not on her radar and she didn’t show much interest in my concern as the parent of a child with life threatening nut allergies.

What do you think about this kind of labeling? Am I being overly picky?

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